Bibliography and web resources

toolkit material

This page provides references to documents, related weblinks and existing toolkits regarding behavioural surveillance methodology and evaluation methods in the HIV/AIDS field. Resources and references are provided for the following topics:

1. Behavioural surveys: general documents, guidelines and toolkits

1.1 Pisani, E., Brown, T., Saidel, T., Rehle, T., & Carael, M.. Meeting the Behavioural Data Collection Needs of National HIV/AIDS and STD Programmes. A joint Impact/FHI/UNAIDS workshop: report and conclusions. UNAIDS, USAID, Impact,1998.

1.2 Family Health International (2000). Behavioral surveillance surveys: guidelines for repeated behavioral surveys in populations at-risk of HIV. Bangkok: Family Health International.

1.3 National Center for Chronic Disease Prevention and Health Promotion (CDC), Behavioral Risk Factor Surveillance System (BRFFS) user guide

The User's Guide is a manual covering all aspects of BRFSS survey operations. This fully navigable, fully printable PDF version includes the following information: processes of the BRFSS, survey protocol, staffing, questionnaire development, survey methodology, data collection and management, quality assurance, funding, data use and promotion, reference material.

1.4 Most-at-risk populations: Sampling strategies and design tool (web-based toolkit)

In 2005, following a consultation on surveillance of most-at-risk populations, the Surveillance and Survey Technical Working Group of the Office of the Global AIDS Coordinator tasked CDC to lead an effort to create a user-friendly tool that would help survey practitioners assess and choose appropriate sampling methods for different populations in different settings. This interactive, web-based tool is the result of that effort.

1.5 Magnani, R., Sabin, K., Saidel, T., & Heckathorn, D. (2005). Review of sampling hard-to-reach and hidden populations for HIV surveillance. AIDS, 19 Suppl 2, S67-S72.

1.6 Johnston L.G., Malekinejad M., Kendall C., Iuppa I.M., Rutherford G.W. Implementation challenges to using respondent-driven sampling methodology for HIV biological and behavioral surveillance: field experiences in international settings. AIDS Behav 12(4 Suppl.):S131-41, 2008.

1.7 Kendall C., Kerr L.R., Gondim R.C., Werneck G.L., Macena R.H., Pontes M.K., Johnston L.G., Sabin K., McFarland W. An empirical comparison of respondent-driven sampling, time location sampling, and snowball sampling for behavioral surveillance in men who have sex with men, Fortaleza, Brazil. AIDS Behav 12(4 Suppl):S97-104, 2008.

1.8 Malekinejad M., Johnston L.G., Kendall C., Kerr L.R., Rifkin M.R., Rutherford G.W. Using respondent-driven sampling methodology for HIV biological and behavioral surveillance in international settings: a systematic review. AIDS Behav 12(4 Suppl):S105-30, 2008.

1.9 Mills, S., Saidel, T., Magnani, R., & Brown, T. (2004). Surveillance and modelling of HIV, STI, and risk behaviours in concentrated HIV epidemics. Sexually Transmitted Infections, 80, 57-62.

1.10 UNAIDS. A framework for monitoring and evaluating HIV prevention programmes for most-at-risk populations.  

1.11 WHO. Toolkit for targeted HIV/AIDS prevention and care in sex work settings. WHO, Geneva 2005.

2. Prevalence surveys 2.1 UNAIDS/WHO Working Group on Global HIV/AIDS and STI surveillance. Guidelines for measuring national HIV prevalence in population-based surveys. UNAIDS, Geneva.

2.2 UNAIDS/WHO Working Group on Global HIV/AIDS and STI Surveillance. Guidelines for conducting HIV sentinel serosurveys among pregnant women and other groups. UNAIDS/03.49E. UNAIDS, Geneva, December 2003.

3. Triangulation methods

3.1 WHO, UNAIDS, GFATM. HIV triangulation resource guide: synthesis of results from multiple data sources for evaluation and decision-making. WHO, Geneva, 2009.

3.2 Rutherford GW, McFarland W, Spindler H, White K, Patel SV, Aberle-Grasse J, Sabin K, Smith N, Taché S, Calleja-Garcia JM, Stoneburner RL.Public health triangulation: approach and application to synthesizing data to understand national and local HIV epidemics.  BMC Public Health 2010, 10:447 

4. Rapid assessment methods

4.1 MEASURE Evaluation. Priorities for Local AIDS Control Efforts (PLACE).

This method is a rapid assessment tool to monitor and improve AIDS prevention program coverage in areas where HIV transmission is most likely to occur.

4.2 FHI, USAID, 2005. HIV Rapid Assessment Guide.

4.3 WHO. Rapid assessment and response adaptation guide on HIV and MSM.  WHO/HIV/2004.14